Archive for the ‘Family’ Category

Disney World Vacation

Monday, October 9th, 2006

We’re on vacation in Disney World. Pictures can be viewed on our gallery web site.


Wednesday, July 12th, 2006

We got hit with a tornado this afternoon. Everyone is fine, but the trees didn’t fare too well.

Update 23 July 2006: More pictures at

Happy New Year

Friday, January 6th, 2006

Gordon Usticke

Sunday, June 5th, 2005
Today would have been my father’s 70th birthday.

Saffy’s Spice Jar Collection

Thursday, May 5th, 2005

3 years post-transplant!

Friday, January 21st, 2005

Today is three years since Saffy’s liver transplant on January 21, 2002.

Jan 21 2003 Jan 21 2004 Jan 21 2005

Saffy’s First Day of School

Sunday, October 17th, 2004

Saffy attended her first day of the full nursery school year last month. She started with plenty of separation anxiety but now she pushes mommy out the classroom door.

A little nervous Liam says goodbye
Off to school… A masterpiece!
Making a snack placemat An exhausting day

48 Year IHE Survivor

Sunday, September 12th, 2004

Carol Carlson shared the following message with our Infintile Hemangioendothelioma (IHE) Support Group.


Subject: [ihe] Hello from a long-term survivor


Date: Sun, 12 Sep 2004 07:44:34 -0500

I am Carol Carlson. I am a 48 year survivor of infantile hemangioendothelioma. I was diagnosed at 6 months of age through exploratory abdominal surgery in 1956 (no fancy biopsy methods then!). My parents were told that there was no cure for my disease and that I would die within a matter of months. My mother (the woman who NEVER takes “no” for an answer) kept searching for options. She heard about Cobalt Radiation as a possible treatment for some types of cancer and searched until she found a doctor who was willing to try it on my multiple liver tumors. I was treated at Minneapolis Children’s Hospital by Dr. Tague Chisholm. Obviously it worked on me. I have lived a normal life (if there is such a thing). I have two beautiful adult children of my own. I guess I am a medical curiosity because I get treated with the 101 questions routine every time I visit a new doctor… Just thought I would share my story. My father has passed on but my mother is still with us. I believe she would be happy to share her thoughts and memories with anyone as would I.

My heart goes out to all the families with children being treated for this disease. Never give up hope. I’m certainly glad my parents never did.

What an uplifting story from someone who overcame this rare condition 45 years before Saffy!

New Digital Camera

Sunday, September 5th, 2004

We bought a new digital camera last week: the Casio Exilim EX-Z40. It’s tiny — the height and width of a credit card — yet has a 2 inch screen and is 4 megapixels.

I found the perfect case for it: a mini Crown Royal whisky bag. It’s the perfect size, light weight, and nice and soft. They’re fairly cheap to pick up on eBay.

Happy Birthday Saffy!

Tuesday, August 24th, 2004

Saffy turned 3 yesterday! Since they do everything together, Liam is helping her blow out the candles.